When I think of what this country collectively pays for its health "care," I could just scream. Highest paid system in the world and we all have stories like this. I hope you can find help for your issue someday, somewhere. Once took me three years to get a pretty basic problem addressed.

https://medium.com/in-fitness-and-in-health/the-embarrassing-medical-problem-it-took-four-doctors-and-three-years-to-solve-c2f3b66e0986